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MEASUREMENT AND PROMOTION OF ACTIVITY PARTICIPATION OF CHILDREN AND YOUTH

The ultimate aim of my work is to inform the development of interventions, programs and policies designed to promote meaningful participation of children and youth in home, school and community activities. My research has focused primarily on the needs of children and youth with traumatic and other acquired brain injuries and their families but has relevance for other children, youth and families.

I have developed and refined measurement tools to examine participation of children and youth with disabilities and the physical and social environmental factors that affect their participation. I am the primary author of the Child and Adolescent Scale of Participation (CASP) and Child and Adolescent Scale of Environment (CASE) and a co-author of the more recent Participation and Environment Measure for Children and Youth (PEM-CY).  I have presented on conceptual and methodological considerations for measuring participation using approaches that are consistent with the goals of the child and family and specific purposes of the research and intervention program.

One funded project that I am currently working on with a team of interdisciplinary colleagues is developing a multi-site intervention (Social Participation And Navigation or SPAN) to promote social participation of  teenagers with traumatic brain injury using app and web-based technology and college student coaches.   I am also collaborating with another team of colleagues to develop  an intervention approach that incorporates and builds upon family strategies to promote their child’s participation in activities that are important to the child and family.  So stay tuned…