Measurement Tools

The following administration and scoring guidelines are downloadable for free.  The measures are included in the guidelines.

Colleagues who are interested in translating the CFFS, CASP, CASE and CAFI into another language must contact me first, provide me with contact information (name, institution, purpose for translating and using the measure/s) and agree to follow these translation guidelines:

CFFS translation-modification guidelines 12-13-16

1. The Child and Family Follow-up Survey (CFFS, Bedell, 2011):

CFFS Administration & Scoring Guidelines 9-24-11

This parent-guardian report survey was originally designed to assess the needs of children and youth with traumatic and other acquired brain injuries as well as their families after the children were discharged from inpatient rehabilitation.  this survey asks questions about the child and family and about the type and quality of services received after discharged. The CFFS  includes the three measures described next (The CASP, CASE and CAFI) that can be used separate from the CFFS in research or practice.

2. The Child and Adolescent Scale of Participation (CASP, Bedell, 2011):

CASP Administration & Scoring Guidelines 8-19-11

The CASP was initially designed as part of the The Child and Family Follow-up Survey (CFFS), but can be and often is used separate from the CFFS in research and practice.   It was designed as a parent/guardian measure.  There is a youth report version available as well:

CASP – Youth Version Revised 12-29-11

Psychometric results of the youth version is reported in:

McDougall, J., Bedell, G., & Wright, V. (2013). The youth report version of the Child and Adolescent Scale of Participation (CASP): Assessment of psychometric properties and comparison with parent report. Child: Care, Health and Development, 39, 512-522. doi: 10.1111/cch.12050.

3. The Child and Adolescent Scale of Environment (CASE, Bedell, 2011):

The CASE is an adaptation of the Craig Hospital Inventory of Environmental Factors (CHIEF;  Whiteneck, et al., 2004), a measure to examine the frequency and impact of the physical, attitudinal ans social environmental barriers encountered by adults with traumatic brain injuries and other disabilities.  The CASE was initially designed as part of  the Child and Family Follow-up Survey (CFFS) and thus is based on parent/guardian report.  It examines the perceived impact (not frequency)  of environmental problems encountered by the child and family.  The CASE be used separate from the CFFS in research and practice, but is most often used in combination with the CASP and CAFI.

CASE Administration & Scoring Guidelines 8-19-11

4. The Child and Adolescent Factors Inventory (CAFI, Bedell, 2011):

The CAFI is an inventory of problems in physical, cognitive and psychosocial functioning and other symptoms encountered by children with acquired brain injuries as well as other childhood disabilities. It was initially designed as part of the The Child and Family Follow-up Survey (CFFS), but can be used separate from the CFFS in research and practice.   It is most often used in combination with the CASP and CASE.

CAFI Administration & Scoring Guidelines 8-22-11

Information about the following measures are available at the CanChild Centre for Childhood Disability Research website:

5. Participation and Environment Measure for Children and Youth (PEM-CY, Coster, Law, & Bedell, 2010):

The Participation and Environment Measure for Children and Youth (PEM-CY) examines participation in home, school and community settings and environmental factors that affect participation in these three settings.  For more information about the PEM-CY, please visit the Participation and Environment Knowledge Hub website at the CanChild Centre for Childhood Disability Research, McMaster University:

https://canchild.ca/en/resources/248-participation-and-environment-measure-for-children-and-youth-pem-cy

6. Young Children’s Participation and Environment Measure (YC-PEM, Khetani, Coster, Law, & Bedell, 2010):

The Young children’s Participation and Environment Measure (YC-PEM) examines participation in home, school and community settings and environmental factors that affect participation in these three settings for young children (o-5).  For more information about the PEM-CY, please visit the Participation and Environment Knowledge Hub website at the CanChild Centre for Childhood Disability Research, McMaster University:

https://canchild.ca/en/resources/223-young-children-s-participation-and-environment-measure-ycpem