Publications

PUBLICATIONS   (See recent CV for full list)

  1. Lamash, L., Bedell, G., Josman, N. (2019). Participation patterns of adolescents with autism spectrum disorder compared to their peers: Parents’ perspectives. British Journal of Occupational Therapy, 1-9. https://doi.org/10.1177%2F0308022619853518
  2. Killeen, H., Shahin, S., Law, M., Bedell, G. & Anaby, D.(2019). Supporting the participation of youth with physical disabilities: Parents’ strategies. British Journal of Occupational Therapy, 82(3), 153-161 https://doi.org/10.1177/0308022618808735
  3. Wade, S.L., Bedell, G., King, J.A., Jacquin, M.,* Turkstra, L.S., Haarbauer-Krupa, J., Johnson, J., Salloum, R., & Narad., M.E. (2018). Social Participation and Navigation (SPAN) program for adolescents with acquired Brain Injury: Pilot findings. Rehabilitation Psychology, 63(3), 327-337. http://dx.doi.org/10.1037/rep0000187
  4. Narad, M.E., Bedell, G., King, J.A., Johnson, Turkstra, L.S., Haarbauer-Krupa , J., Wade, S.L. (2018). Social Participation and Navigation (SPAN): Description and usability of app-based coaching intervention for adolescents with TBI. Developmental Neurorehabilitation, 21,439-448. https://doi.org/10.1080/17518423.2017.1354092
  5. Tousignant, B., Jackson, P., Massicotte, E., Beauchamp, M., Achim, A., Vera-Estay, E., Bedell, G., & Sirois, K. (2018). Impact of traumatic brain injury on social cognition in adolescents and contribution of non-social cognitive functions. Neuropsychological Rehabilitation, 28(3), 429-447 https://doi.org/10.1080/09602011.2016.1158114
  6. Sirois, K., Tousignant,B., Boucher, N., Achim, A.M., Beauchamp, M.H., Bedell, G., Massicotte, E., Vera-Estay, E., & Jackson, P.L. (2017). The contribution of social cognition in predicting social participation following moderate and severe TBI in youth.  Neuropsychological Rehabilitation, 1-16.   https://doi.org/10.1080/09602011.2017.1413987
  7. Chen, W.C.,* Bedell, G.M., Yen, C.F., Liou, T.H., Kang, L.K., Liao, H.F., & Hwang, A.W. Psychometric Properties of the Chinese Version of the Child and Adolescent Factors Inventory (CAFI-C) (2017). Research in Developmental Disabilities, 68, 111-121. https://doi.org/10.1016/j.ridd.2017.07.007
  8. Golos, A.** & Bedell, G. (2017). Responsiveness and discriminant validity of the Child and Adolescent Scale of Participation assessed over a three-year period with children and adolescents with TBI. Developmental Neurorehabilitation. 431-438. https://doi.org/10.1080/17518423.2017.1342711
  9. Bedell, G., Wade, S.L., Turkstra, L.S., & Haarbauer-Krupa, J. & King, J. (2017). Informing design of an app-based coaching intervention to promote social participation of teenagers with traumatic brain injury: Stakeholder perspectives. Developmental Neurorehabilitation, 20, 408-417. https://doi.org/10.1080/17518423.2016.1237584
  10. Golos, A.** & Bedell, G. (2016). Consistency of psychometric properties of the Child and Adolescent Scale of Participation assessed over a three-year period with children and adolescents with TBI. NeuroRehabilitation, 38, 311-319. https://doi.org/10.3233/NRE-161322
  11. Bedell, G., & McDougall, J. (2015). The Child and Adolescent Scale of Environment (CASE): Further validation with youth who have chronic health conditions. Developmental Neurorehabilitation,18, 375-382. https://doi.org/10.3109/17518423.2013.855273
  12. de Kloet, A.J., Berger, M., Bedell, G.M., & Catsman-Berrevoets, C.E. (2015). Psychometric evaluation of the Dutch language version of the Child and Family Follow-up Survey (CFFS). Developmental Neurorehabilitation, 18, 357-364. https://doi.org/10.3109/17518423.2013.850749
  13. Hwang, A., Yen, C., Liou, T., Bedell, G., Granlund, M., Teng, S., & Liao, H. (2015).  Development and validation of the ICF-CY based Functioning Scale of the Disability Evaluation System -Child version (FUNDES-Child) in Taiwan.  Journal of the Formosan Medical Association, 114, 1170-1180. https://doi.org/10.1016/j.jfma.2015.11.002
  14. Kang, L. J., Yen, C.F., Bedell, G., Simeonsson, R.J., Liou, T.H., Chi, W.C., Liu, S.W., Liao, H.F., & Hwang, A.W. (2015). The Chinese Version of the Child and Adolescent Scale of Environment (CASE C): Validity and reliability for children with disabilities in Taiwan. Research in Developmental Disabilities 38, 64-74. https://doi.org/10.1016/j.ridd.2014.12.019
  15. Higgins, S.H.*, Schwartzberg, S.L., Bedell, G., & Duncombe, L.W. (2014). Current practice and perceptions of group work in Occupational Therapy. GROUP: Journal of the Eastern Group Psychotherapy Society, 38, 317-333.  No PMID
  16. Anaby, D., Law, M., Coster, W., Bedell, G., Khetani, M.A., Avery, L., & Teplicky, R. (2014). The mediating role of the environment in explaining participation of youth with and without disabilities across home, school and community. Archives of Physical Medicine & Rehabilitation, 25, 908-917. doi:10.1016/j.apmr.2014.01.005. PMID 24468018  
  17. Khetani, M., Marley, J., Baker, M., Albrecht, E., Bedell, G., Coster, W., Anaby, D., & Law, M. (2014). Validity of the Participation and Environment Measure for Children and Youth (PEM-CY) for Health Impact Assessment (HIA) in sustainable development projects. Disability and Health, 7, 226-235. doi:10.1016/j.dhjo.2013.11.003. PMID 24680052   
  18. McDougall, J., Bedell, G., & Wright, V. (2013). The youth report version of the Child and Adolescent Scale of Participation (CASP): Assessment of psychometric properties and comparison with parent report. Child: Care, Health and Development, 39, 512-522. https://doi.org/10.1111/cch.12050  
  19. Coster, W., Law, M., Bedell, G., Liljenquist, K., Kao, YC, Teplicky, R. & Khetani, MA. (2013). School participation, supports and barriers of students with and without disabilities, Child: Care, Health and Development, 39, 535-543. https://doi.org/10.1111/cch.12046
  20. Law, M., Anaby, D, Teplicky, R., Khetani, MA, Coster, W., & Bedell, G. (2013). Participation in the home environment among children with and without disabilities. British Journal of Occupational Therapy, 76, 58-66. https://doi.org/10.4276%2F030802213X13603244419112
  21. Hwang, A.W., Liou, T.H., Bedell, G., Kang, L.J., Chen, W.C.*, Yen, C.F., & Chang, K.H. (2013). Psychometric Properties of the Child and Adolescent Scale of Participation – Traditional Chinese version. International Journal of Rehabilitation Research, 36, 211-220. https://doi.org/10.1097/MRR.0b013e32835d0b27
  22. Bedell, G., Coster, W., Law, M., Liljenquist, K., Kao, YC, Teplicky, R., Anaby, D, & Khetani, MA (2013). Community participation, supports and barriers of school-age children with and without disabilities.  Archives of Physical Medicine & Rehabilitation, 94, 315-323. https://doi.org/10.1016/j.apmr.2012.09.024
  23. Coster, W., & Law, M., Bedell, G., Khetani, M. Cousins, M., Teplicky, R. (2012). Development of the Participation and Environment Measure for Children and Youth (PEM-CY): Conceptual basis. Disability and Rehabilitation, 34, 238-246. doi: 10.3109/09638288.2011.603017. https://doi.org/10.3109/09638288.2011.603017
  24. McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S., … & Yeates, K.O. (2012). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma, 29, 678-705. https://doi.org/10.1089/neu.2011.1838
  25. Tirella, L.G.*, Tickle-Degnen, L., Miller, L., & Bedell, G. (2012). Parent strategies for addressing the needs of their newly adopted child. Physical and Occupational Therapy in Pediatrics, 32, 97-110. https://doi.org/10.3109/01942638.2011.610434
  26. Coster, W., Bedell, G., Law, M., Khetani, M., Teplicky, R., Liljenquist, K., Gleason, K. & Kao, Y. (2011). Psychometric evaluation of the Participation and Environment Measure for Children and Youth (PEM-CY). Developmental Medicine & Child Neurology, 53, 1030-1037. https://doi.org/10.1111/j.1469-8749.2011.04094.x
  27. Bedell, G., Khetani, M. Cousins, M., Coster, W., & Law, M. (2011). Parent perspectives to inform development of measures of children’s participation and environment. Archives of Physical Medicine & Rehabilitation, 9 ,765-773. https://doi.org/10.1016/j.jfma.2015.11.002
  28. Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12, 342-351.https://doi.org/10.3109/17518420903087277
  29. Glang, A., Todis, B., Thomas, C.W., Hood, D., Bedell, G., & Cockrell, J. (2008). Return to school following childhood TBI: Who gets services? NeuroRehabilitation, 23, 477-486. PMID 19127001
  30. Bedell, G. (2008). Balancing health, work, and daily life: Design and evaluation of a pilot intervention for persons with HIV/AIDS. Work: A Journal of Prevention, Assessment and Rehabilitation, 31, 131-144. PMID 18957732  
  31. Bedell, G. & Coster, W. (2008). Measuring participation of school-age children with traumatic brain injuries: Considerations and approaches. Journal of Head Trauma Rehabilitation, 23, 220-229. https://doi.org/10.1097/01.HTR.0000327254.61751.e7
  32. DePompei, R., & Bedell, G. (2008). Making a difference for children and adolescents with Traumatic Brain Injury. Journal of Head Trauma Rehabilitation, 4, 191-196.  https://doi.org/10.1097/01.HTR.0000327251.16010.3b
  33. Bedell, G. (2008). Functional outcomes of school-age children with acquired brain injuries at discharge from inpatient rehabilitation. Brain Injury, 22, 313-324. https://doi.org/10.1080/02699050801978948
  34. Sherwin, L., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., Abreu, B., DePompei, R., Gordon, W., & Kreutzer, J. (2006). Domains of a TBI minimal data set: Community reintegration phase (Consensus paper). Brain Injury, 20, 383-389.  https://doi.org/10.1080/02699050600663097
  35. Bedell, G., Cohn, E. & Dumas, H. (2005). Exploring parents’ use of strategies to promote social participation in school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59, 273-284. https://doi.org/10.5014/ajot.59.3.273
  36. Bedell, G. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation, 19, 191-205. PMID15502253
  37. Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18, 65-82. https://doi.org/10.1080/0269905031000110517
  38. Tickle-Degnen, L. & Bedell, G. M. (2003). Heterarchy and hierarchy: A critical appraisal of the “Levels of Evidence” as a tool for clinical decision-making. American Journal of Occupational Therapy. 57, 234-237. https://doi.org/10.5014/ajot.57.2.234
  39. Dumas, H., Bedell, G., & Hamill, S. (2003). Strategies to promote activity performance and participation in children and youth with acquired brain injuries. International Journal of Rehabilitation Research, 26, 303-308.  https://doi.org/10.1097/01.mrr.0000102063.48781.fe
  40. Bedell, G., Haley, S., Coster, W., & Smith, K. (2002). Participation readiness at discharge from inpatient rehabilitation in children and adolescents with acquired brain injuries. Pediatric Rehabilitation, 2, 107-116. https://doi.org/10.1080/1363849021000013540
  41. Bedell, G., Haley, S., Coster, W., & Smith, K. (2002). Developing a responsive measure of change for pediatric brain injury inpatient rehabilitation. Brain Injury, 16, 659-671. https://doi.org/10.1080/02699050210128924
  42. Dumas, H. M., Haley, S. M., Bedell, G. M., & Hull, E. M. (2001). Social function changes in children and adolescents with acquired brain injury during inpatient rehabilitation. Pediatric Rehabilitation, 4, 177-185. https://doi.org/10.1080/13638490210121720
  43. Fertel-Daly, D.*, Bedell, G., & Hinojosa, J. (2001). Effects of a weighted vest on attention-to-task and self-stimulatory behaviors in preschoolers with Pervasive Developmental Disorders. American Journal of Occupational Therapy, 55, 629-640. https://doi.org/10.5014/ajot.55.6.629
  44. Hinojosa, J., Bedell, G., Buchholz, E. S., Charles, J., Shigaki, I. S., & Bicchieri, S. M. (2001). Team collaboration: A case study of an early intervention team. Qualitative Health Research, 11, 206-220.  https://doi.org/10.1177/104973201129119055
  45. Bedell, G. (2000). Daily life for eight urban gay men with HIV/AIDS. American Journal of Occupational Therapy, 54, 197-206.  https://doi.org/10.5014/ajot.54.2.197
  46. Bedell, G., & Kaplan, M. (1996). Providing occupational therapy services for persons with HIV/AIDS and their caregivers: A position paper. American Journal of Occupational Therapy, 50, 853-854. https://doi.org/10.5014/ajot.50.10.853
  47. Anderson, J., Hinojosa, J., Bedell, G., & Kaplan, M. (1990). Occupational therapy for children with perinatal HIV infection. American Journal of Occupational Therapy, 44, 249-255. https://doi.org/10.5014/ajot.44.3.249

NON-REFEREED PUBLICATIONS (Articles, chapters, position papers, monographs, software)

  1. Bedell, G. (2018). Forward to: Frames of Reference for Pediatric Occupational Therapy – 4th Edition, P. Kramer, J. Hinojosa, T.H. Howe. Book. Wolters Kluwer.
  2. Bedell, G. (2012). Measurement of Social Participation. In V. Anderson, & M. Beauchamp (Eds.), Developmental Social Neuroscience and Childhood Brain Insult: Implication for Theory and Practice. New York, NY: Guilford Publications.
  3. Bedell, G., Khetani, M. Coster, Law, M., & Cousins, M. (2012). Measures of participation in community, social and civic life for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants for children and youth with developmental disabilities, London: Mac Kieth Press.
  4. Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (2012). Measures of physical, social and attitudinal environmental factors for children with disabilities. In A. Majnemer (Ed.), Measures of outcomes and their determinants for children and youth with developmental disabilities, London: Mac Kieth Press.
  5. Pediatric Acquired Brain Injury Plan (January, 2009). Working group of the national advisory board of the Sarah Jane Brain Foundation (http://www.thebrainproject.org/).
  6. DePompei, R., Ashley, M., Bedell, G., Lash, M., Dise-Lewis, J., Glang, A., Gordon, W., Todis, B., Tyler, J., & Savage, R. (Winter, 2008). Executive Summary: A call to action for children and adolescents with Traumatic Brain Injury: Funding public policy, research and services. TBI Challenge. (Also published in 2008 in Journal of Head Trauma Rehabilitation, 4, 193- 196.)
  7. Bedell, G. (2006). Research Update: The Child and Adolescent Scale of Participation. Brain Injury Professional, 3.
  8. Bedell, G. (2004). Predictors of functional outcomes and needs at discharge from inpatient rehabilitation in children and youth with acquired brain injuries. Archived report (pp. 1-65). National Rehabilitation Information Center (NARIC), National Institute on Disability and Rehabilitation Research, U.S. Department of Education, Washington D.C.
  9. Fertel-Daly, D.*, Bedell, G., & Hinojosa, J. (2003). Effects of a weighted vest on attention-to-task and self stimulatory behaviors in preschoolers with Pervasive Developmental Disorders. In C. B. Royeen (Ed.) Pediatric Issues in Occupational Therapy. Bethesda, MD: AOTA Press. (pp. 215-229).
  10. Hinojosa, J., Bedell, G., & Kaplan, M. (2003). Children with HIV/AIDS and their families. In E. B. Crepeau, E. Cohn, & B. Schell (Eds.) Willard and Spackman’s Occupational Therapy (10th ed.). Philadelphia: J. B. Lippincott-Raven. (pp.725-729).
  11. Bedell, G., & Kaplan, M. (1999). Case study: A motor skill acquisition frame of reference. In P. Kramer, & J. Hinojosa (Eds.), Frames of Reference for Pediatric Occupational Therapy (2nd ). Baltimore: Williams & Wilkins.
  12. Kaplan, M., & Bedell, G. (1999). A motor skill acquisition frame of reference. In P. Kramer, & J. Hinojosa (Eds.), Frames of Reference for Pediatric Occupational Therapy (2nd). Baltimore: Williams & Wilkins.
  13. Hinojosa, J., Bedell, G., & Kaplan, M. (1998). Children with HIV/AIDS and their families. In M. E. Neistadt and E. B. Crepeau (Eds.) Willard and Spackman’s Occupational Therapy (9th ed.) (pp. 618-621). Philadelphia: J. B. Lippincott-Raven.
  14. Bedell, G. (1998). Finding balance: The daily lives of eight urban gay men with HIV/AIDS (Doctoral dissertation, New York University). Dissertation Abstracts International, 58, 6529B.
  15. Bedell, G. (1994). HIV/AIDS: A consumer guide for daily living. Rockville, MD: American Occupational Therapy Association.
  16. Kaplan, M. & Bedell, G. (1992). Case study: Neurodevelopmental treatment frame of reference. In P. Kramer, & J. Hinojosa (Eds.), Frames of Reference for Pediatric Occupational Therapy (pp. 484-510). Baltimore: Williams & Wilkins.
  17. McCreedy, P., Personius, J. & Bedell, G. (1990). Occupational Therapy: The challenge of AIDS. In E. McGriff, P. Hurley, A. Grossman, & R. Malgady (Eds.), New York University Regional AIDS Education and Training Center curriculum guide & videotape (part VI). Health Resources & Services Administration Grant # BRT-000017-02-0.

 

WEB-BASED RESOURCES (WEBSITE, APPLICATIONS, PUBLICATIONS & RESOURCES)

SOCIAL PARTICIPATION AND NAVIGATION

  1. Bedell, G., Wade, S. L. (2018). Social Participation And Navigation (SPAN): Website and application: https://spanprogram.com/. https://spanprogram.com/

PARTICIPATION KNOWLEDGE HUB

Published and distributed by CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada.  https://www.canchild.ca/en/research-in-practice/participation-knowledge-hub

  •  RESEARCH IN BRIEFS:
  1. Coster, W., Law, M., Bedell, G., Khetani, M.,  Anaby, D., Teplicky, R., & Lin, C.Y. (2013). The Participation and Environment Measure for Children and Youth (PEM-CY): An innovative measure for home, school and community

https://www.canchild.ca/en/resources/228-the-participation-and-environment-measure-for-children-and-youth-pem-cy-an-innovative-measure-for-home-school-and-community

       2. Bedell, G., Khetani, M., Cousins, M., Coster, W., & Law, (2013).

https://www.canchild.ca/en/resources/234-how-parents-view-their-child-s-participation-and-environment-creating-a-foundation-for-the-pem-cy

       3. Coster, W., Bedell, G., Law, M., Khetani, M., & Teplicky, R. (2013).

https://www.canchild.ca/en/resources/235-an-evaluation-of-the-participation-and-environment-measure-for-children-and-youth-pem-cyBresnahan, J.*, Hamilton, A.*,

       4. Bresnahan, J.*, Hamilton, A.*, Hollebone, S.*, Lakatos, H.*, Memole, L.*, Bedell,          G., Coster, W., & Law, M. (2013).

https://www.canchild.ca/en/resources/236-parent-needs-and-strategies-for-promoting-child-participation-what-we-learned-from-developing-the-participation-and-environment-measure-for-children-and-youth-pem-cy