by Pamela Katz Ressler, RN, MS-PREP, HN-BC, adjunct faculty Pain Research, Education and Policy Program, Tufts University School of Medicine, PREP-Aired blog moderator
On February 2, 2012, at sites around the world, a remarkable documentary will be premiered. LIFE Before Death seeks to raise awareness of the global issue of untreated and under-treated pain and the lack of adequate access to palliative care.
Dr. Dan Carr, director and founder of the Pain Research, Education and Policy Program (PREP) within Tufts Public Health recently commented on the selection of the Tufts’ PREP program as one of the U.S. movie screening locations, and global issue of pain relief as a human right. “PREP is honored to be one of the sites at which this remarkable film will be premiered worldwide. Sponsored by international pain relief and anti-cancer organizations, LIFE Before Death presents a moving, sobering and ultimately inspiring picture of courage amidst suffering. Tragically, much of the suffering at the end of life documented in this film in emerging economies is the unnecessary consequence of the unavailability of morphine and other inexpensive, effective medications. In first-world countries, patients are caught within health systems whose major goal is curbing prescription drug abuse. At a time when access to pain control is seen as a human right, this film appropriately pushes us out of our comfort zone”, stated Dr. Carr.
As emphasized by Dr. Carr, the issue of pain control in emerging global economies is immense. Global health organizations have estimated that more than 3.3 million individuals die with untreated moderate or severe pain form cancer and HIV each year (2009 WHO and UN Narcotics Control Board). Advocacy for adequate pain and palliative care is essential, concurred Carol Curtiss, MSN, RN-BC, a palliative care expert and adjunct faculty member of the PREP program. Ms. Curtiss stated, “Unrelieved pain and other distressing symptoms are challenges to quality of life, yet millions of people worldwide do not have access to expert care, basic pain medications and the other essential resources. Through viewing this film, LIFE Before Death, I hope participants will acquire or renew their passion to advocate for changes in policy, education and research that will make access to pain and palliative care a reality for people who experience life-threatening illnesses. For me, this film reaffirms what I’ve learned over the years by working with colleagues in developing countries and in clinical practice here – we have much more work to do to assure that individuals everywhere have the right to effective pain management and palliative care throughout their lives. In the U.S., we are facing difficult times dealing with misuse and diversion of medications. We MUST be sure that people with pain have access to evidence-based pain management and palliative care in the U.S. and around the world.”
Join together with clinicians, educators, policy makers, advocates and activists who believe that pain relief is a human right for the Tufts’ PREP screening of LIFE Before Death on Thursday, February 2 from 3:00-5:15 PM at the Wolff Auditorium at Tufts Medical Center. The Tufts’ screening will be introduced by nationally syndicated health columnist, Judy Foreman and followed by a panel discussion with pain and palliative care experts.
Click here for more information
LIFE Before Death Movie Trailer
January 30th, 2012
by Pamela Katz Ressler, MS-PREP, RN, HN-BC, adjunct faculty Pain Research, Education and Policy Program, Tufts University School of Medicine, PREP-Aired Blog moderator
Jessica Peck, MAc, LAc, MS-PREP candidate presented her capstone research project on December 9, 2011 to a group of students, faculty members and invited guests at the Tufts University School of Medicine. Jessica initiated an ambitious, ongoing study for her capstone project which is being conducted at the Maine Medical Center’s Palliative and Supportive Care Clinic. The focus of her pilot research study is the implementation and evaluation of the feasibility of using acupuncture plus standard care to treat pain and associated symptoms in cancer patients. Jessica will continue to work with her capstone preceptor, Dr. Lauren Michalakes, Director of Palliative Care at Maine Medical Center as her study progresses.
Congratulations, Jessica, for embracing the collaborative nature of the Pain Research, Education and Policy Program by creating a working partnership between eastern and western models of health care.
Jessica Peck and NESA's Amy Hull
January 6th, 2012
By Marcin Chwistek, MD, Attending Physician, Pain and Palliative Care Program,
Supportive Oncology Care, Fox Chase Cancer Center, Philadelphia, PA
I joined Twitter around the last elections, fascinated by social media’s power in inducing a societal change. The optimism and the real sense that we can change things for better were palpable. I had not felt anything of that magnitude since I witnessed, as a college student, the first democratic election in my native Poland in the early 1980’s. I stuck with Twitter since then, and have been primarily using it to tweet about issues related to cancer pain and palliative medicine. Over time, my community on Twitter has evolved into a fascinating mix of people: patients, medical librarians, consultants, physicians, head hunters, nurses, community organizers, news organizations, social workers and cancer advocates to name a few. And although many of them are interested in issues concerning pain management and cancer care in general, it would be incredibly naïve to think we all have common goal or even agree on things. Our backgrounds, life experiences, geography could not be more diverse. And yet, I have a sense that as a group we have a new responsibility. Clay Shirky, who has been writing about social media for a while, said this during his recent TED talk: “Old Media: professionals broadcasting messages to amateurs are increasingly slipping away. In a world where former audience are now increasingly full participants, it is less and less about crafting a single message to be consumed by individuals, it is more about environment for convening and supporting groups
. How can we best use it? ”
Traditionally, it was the pain physicians or researchers broadcasting to the community of pain patients. They might have written books on the subject, speak at a conference or for a TV program. Now it is pain patients (and again there is this amazing variety within the group – cancer pain, fibromyalgia pain, back pain etc), pain advocates, pain physicians, pain educators, pain researches organizing their own groups on Twitter, MySpace or Facebook. The groups may function as a support group, as a place to exchange ideas or perhaps as a resource. The Internet makes those goals incredibly easy. Without however committing the groups to bigger goals, more ambitious goals, goals that would affect lives of many people I am afraid we are not using the power we were given. Pema Chodron in her new book,”Taking the Leap”, writes, about “three basic qualities that have always been with us but perhaps have gotten buried and been almost forgotten”
natural intelligence, natural warmth, natural openness. I would argue that these qualities apply to groups too. There is a natural intelligence that is bigger than the sum of our individual minds, natural intelligence of the groups or “the wisdom of crowds” as James Surowiecki names it. We need to engage it as it would point naturally to what needs to be done. Natural warmth is our empathy. But hearing the stories, which being a part of online community enables, our empathy increases and we all are moved to action. Empathy is a seed of compassion, and compassion is an urge to act on behalf of those who suffer. We can choose to be moved by the stories we hear and act on them. Empathy has the power to focus our attention on issues we may have otherwise not known about. And finally, there is natural openness that Pema Chodron describes as the spaciousness of our sky-like minds. It is a beautiful metaphor, and when I think about social media, this metaphor seems to be even more powerful – Individuals working in their own seemingly separate environments, but connected on the net. It is literally “minds connecting in the sky”. Pema contrasts this attitude of openness with a fear based view “where everyone is either an enemy or a friend, a threat or an ally, someone to like, dislike or ignore.” And as anyone who has experienced it first hand, as a patient or a clinician knows, medicine is riddled with fear. There is fear of misdiagnosing the disease, fear of not being good enough, fear of not being in control, fear of being in pan, fear of not regaining ones health, fear of relationship etc. Fear seems to be in a way of most of what we do. As Parker Palmer says in one of his essays:”Fear is not just an emotion, but a central feature of the culture that surrounds us”. Being in a group, feeling a strong sense of community united to improve wellbeing of others, could be one of the best antidotes to fear. And it comes to generating a change in how medicine is practiced today; it may turn out to be our biggest asset.
September 2nd, 2009