Motivate PD: Developing a Client-Centered Social Self-Management Program for People with Parkinson’s Disease
Authors:
Lani Silverstone, OT/s, Linda Tickle-Degnen, PHD, OTR, FAOTA, & Augusta Polhemus, OTD
Abstract:
Current rehabilitation programs for people with Parkinson’s disease (PwPD) focus primarily on motor symptom remediation. Project aimed to develop a client-centered social self-management (SocM) manual for PwPD that addressed biopsychosocial health through involvement in valued daily activities. Manual development included literature review and analysis of de-identified data from the Social Self-Management (SocM) database. Two rounds of the Delphi Method was utilized to determine manual helpfulness, relevance, and quality. After revisions, the manual was disseminated via e-mail and printed flyers at the Tufts Dance for PD event. The manual, Motivate PD, has been evaluated and endorsed by PwPD and eight interdisciplinary experts in the Parkinson’s community; it is ready for piloting to determine its effectiveness in supporting PwPD and care partners over time.
Key Words:
Parkinson’s Disease, Social Self-Management, Manual