School-Based Support for Student with Sickle Cell Disease
Authors:
Siarah Jones, OT/s, Tufts University & Margaret Morris, OT, OTD, OTR, BCP, Tufts University.
Abstract:
When discussing chronic conditions in school-based practice there is a common gap across resources, which is the failure to address the needs of children with sickle cell disease (SCD), which primarily affects Black children. Literature review and informal retrospective interviews with a SCD survivor and her mother were used to: explore and illustrate the impacts of SCD on these individuals as the student aged through the school system and guide development of resources for families and training school personnel. Research literature on SCD emphasizes the need for improved support and advocacy for this population in the school system. OTPs in school based practice can play a vital role by supporting self-management, patient education, and skill development.
Key Words:
advocacy, testimony, and accommodation