Patient Advocacy Leaders and Drug Development Industry Network

Welcome to PALADIN,  a first-of-its-kind consortium dedicated to transforming the pace of medicines development through optimizing patient advocacy group–industry collaboration.

We are a pre-competitive, disease-agnostic membership community working together to create consensus-based resources, guidelines and solutions that will transform how patient advocacy groups, pharmaceutical and biotechnology companies collaborate in the future.

“We’re excited to be building on the momentum that Vicky DiBiaso created as the Founding Executive Committee Chair in collaboration with patient advocacy groups (PAG) and pharmaceutical company members. Our consensus-driven approach to optimize PAG-Industry collaboration is delivering valuable and useful resources and insights to the clinical research enterprise.”

Optimizing “How” Patient Advocacy and Biopharma can (13)

Len Valentino,
President, World Federation of Hemophilia USA,
PALADIN Executive Committee Co-Chair

deirdre

Deirdre BeVard,
SVP, R&D Strategic Operations, CSL
PALADIN Executive Committee Co-Chair

Len Valentino,
President, World Federation of Hemophilia USA,
PALADIN Executive Committee Co-Chair

Deirdre BeVard,
SVP, R&D Strategic Operations, CSL
PALADIN Executive Committee Co-Chair

New & Popular Resources

Our Why

The last decade has seen a proliferation in the number of investigational therapies, companies sponsoring active clinical trials, and with that, the number of collaborations between patient advocacy groups and biopharmaceutical companies. Collaborations aim to:

  • Reach and recruit patients
  • Help shape clinical development plans
  • Ensure outcomes relevant to patient communities are reflected in drug development activity
  • Support access to clinical trials for historically underserved communities

While well-intentioned, with few exceptions, collaborations between patient advocacy groups and industry have been limited in their effectiveness in making clinical research faster and more efficient. 

PALADIN aims to standardize and structure these R&D-driven collaborations to optimize their impact.

Growing Influence on Awareness

17% of patients in 2025 first learned about trials through a PAG; (12% in 2023, 5% in 2015)

CISCRP, 2025

Operational Benefits

PAG engagement reduces enrollment cycle time by 20-30% and increases participation rates by 15-20%.

Tufts CSDD & CTTI, 2021

Preferred Information Source

30% of patients prefer hearing about studies through a PAG.

CISCRP, 2025

Impact on Representation

Partnerships with PAGs improve participant diversity by ~30%, helping close representation gaps.

JAMA, 2024 

Trusted Partners

Only 18% of patients trust pharma vs. 46% who trust research centers; 49% say pharma is more trustworthy when it partners with patients. 

CISCRP, 2025

Retention Boost

PAG-led recruitment improves retention by 25%, ensuring studies stay on track and deliver meaningful data.

National Library of Medicine, 2023 

Our Why

The last decade has seen a proliferation in the number of investigational therapies, companies sponsoring active clinical trials, and with that, the number of collaborations between patient advocacy groups and biopharmaceutical companies. Collaborations aim to:

– Reach and recruit patients

– Help shape clinical development plans

– Ensure outcomes relevant to patient communities are reflected in drug development activity

– Support access to clinical trials for historically underserved communities

While well-intentioned, with few exceptions, collaborations between patient advocacy groups and industry have been limited in their effectiveness in making clinical research faster and more efficient. 

PALADIN aims to standardize and structure these R&D-driven collaborations to optimize their impact.

Have additional questions about our efforts?

Click here to contact us.