Resource Repository

The PALADIN Consortium aims to optimize how patient advocacy groups (PAGs) and pharmaceutical companies (Industry) collaborate to ultimately transform the pace of medicines development.

PALADIN has developed this repository of publicly available resources to help improve the efficiency and effectiveness of PAG-Industry Collaborations. The repository is intended to house best-in-class knowledge sharing—such as tools, templates, case studies, articles, white papers, etc.—to assist in establishing and maintaining effective collaborative relationships.

Representatives within the 20+ participating PALADIN Consortium members have gathered foundational resources, tools and templates utilized in their successful collaborations. Over the next year, our goal is to grow this repository and support the uptake of best practices within the broader PAG and Industry communities.

If you are a patient advocacy group or pharmaceutical company and would like to share successful engagement and collaboration tools and resources, please consider contributing to the repository. We would also appreciate any feedback on the utility of the repository  or resource gaps that PALADIN can address to help you develop and grow effective collaborations.

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Patient Engagement Toolbox

Patient Engagement Toolbox Patient Engagement Toolbox | IMI (formerly IHI) Paradigm A collection of ...

Mutual Confidentiality Agreement Example

Mutual Confidentiality Agreement Example Mutual Confidentiality Agreement Example | Template Shared ...

Master Services Agreement Template

Master Services Agreement Template Master Services Agreement Template | Template Shared by PALADIN ...

Research Study Thank You Caregiver Sample

Research Study Thank You Caregiver Sample Research Study Thank You Caregiver Sample | Sample Shared ...

Family Caregiver Roles in Medical Product Development

Family Caregiver Roles in Medical Product Development Family Caregiver Roles in Medical Product ...

Clinical Trials Essentials: What You Need to Know to be a Part of the Latest Research

Clinical Trials Essentials: What You Need to Know to be a Part of the Latest Research Clinical ...

MRCT Post Trial Responsibilities Toolkit

MRCT Post Trial Responsibilities Toolkit MRCT Post Trial Responsibilities Toolkit | MRCT Center of ...

Case Studies | MRCT Center of Brigham and Women’s Hospital and Harvard

Case Studies Case Studies | MRCT Center of Brigham and Women’s Hospital and Harvard The MRCT ...

Return of Individual Research Results

Return of Individual Research Results Return of Individual Research Results | MRCT Center of Brigham ...

Clinical Research Glossary

Clinical Research Glossary Clinical Research Glossary | MRCT Center of Brigham and Women’s ...

IRB and HRPP Toolkit

IRB and HRPP Toolkit IRB and HRPP Toolkit | MRCT Center of Brigham and Women’s Hospital and ...

Equity by Design in Clinical Research: The EbD Metrics Framework

Equity by Design in Clinical Research: The EbD Metrics Framework Equity by Design in Clinical ...

Research Study Visit Scheduler Sample

Research Study Visit Scheduler Sample Research Study Visit Scheduler Sample | Sample Example of a ...

Research Study Visit Guide Sample

Research Study Visit Guide Sample Research Study Visit Guide Sample | Sample Shared by PALADIN ...

Research Study Brochure Sample

Research Study Brochure Sample Research Study Brochure Sample | Sample Shared by PALADIN Member ...

Sample Organization Chart within R&D Patient Centricity

Sample Organization Chart within R&D Patient Centricity Sample Organization Chart within R&D ...

Sample Organization Chart within R&D Clinical Operations

Sample Organization Chart within R&D Clinical Operations Sample Organization Chart within ...

Clinical Trials: Myths and Facts

Clinical Trials: Myths and Facts Clinical Trials: Myths and Facts | AKF A report for patients to ...

University of Maryland Patients Program

University of Maryland Patients Program University of Maryland Patients Program | UMD | Example The ...

Multi-Regional Clinical Trials Website

Multi-Regional Clinical Trials (MRCT) Website Multi-Regional Clinical Trials Website | MRCT ...

MS Minority Research Engagement Toolkit

MS Minority Research Engagement Toolkit MS Minority Research Engagement Toolkit – Researchers ...

About Page | Clinical Trials for All

About Page | Clinical Trials for All About Page | Clinical Trials for All A website dedicated to ...

Talking to Your Patient About a Clinical Trial

Talking to Your Patient About a Clinical Trial Talking to Your Patient About a Clinical Trial | NIH ...

CISCRP’s Aware for All Program

CISCRP’s AWARE for All Program AWARE for All Program | CISCRP CISCRP: Aware for All, developed ...

NIH All of Us Research Program

NIH All of Us Research Program All of Us Research Program | NIH The NIH All of Us Research Program ...

Allergy and Asthma Network Trusted Messenger Community Program

Allergy and Asthma Network Trusted Messenger Community Program Allergy and Asthma Network Trusted ...

Sponsorship Agreement Template

Sponsorship Agreement Template Sponsorship Agreement Template | Template Shared by PALADIN Member ...

Services Agreement Template Between Company and Patient

Services Agreement Template Between Company and Patient Services Agreement Template Between Company ...

Unilateral Confidentiality Agreement Template

Unilateral Confidentiality Agreement Template Unilateral Confidentiality Agreement Template | ...

Determining Fair Market Value: Demystifying the Methodology Behind Patient Renumeration

Determining Fair Market Value: Demystifying the Methodology Behind Patient Renumeration Determining ...

Patient Focused Medicines Development (PFMD)

Patient Focused Medicines Development (PFMD) Patient Focused Medicines Development (PFMD) ...

IHI Project Factsheets

Innovative Health Initiative Project Factsheets IHI Project Factsheets | IHI Project from IHI, an EU ...

Innovative Health Initiative

Innovative Health Initiative Innovative Health Initiative | IHI Information on IHI, an EU ...

Patient Centered Outcomes Research Institute

Patient Centered Outcomes Research Institute Patient Centered Outcomes Research Institute | PCORI ...

Clinical Trials Transformation Initiative

Clinical Trials Transformation Initiative Clinical Trials Transformation Initiative | CTTI ...

CDER Patient-Focused Drug Development

CDER Patient-Focused Drug Development CDER Patient-Focused Drug Development Overview of PFDD ...

MS Minority Research Engagement Toolkit – Clinicians

MS Minority Research Engagement Toolkit – Clinicians MS Minority Research Engagement Toolkit ...

CISCRP Perceptions and Insights Study 2021

CISCRP Perceptions and Insights Study 2021 CISCRP Perceptions and Insights Study 2021 | CISCRP A ...

MRCT Resources

MRCT Resources MRCT Resources| MRCT Center of Brigham and Women’s Hospital and Harvard ...

DIA Patient Centricity Research Summary Results

DIA Patient Centricity Research Summary Results DIA Patient Centricity Research Summary Results | ...

American Kidney Fund YouTube playlist on Clinical Trials

American Kidney Fund YouTube playlist on Clinical Trials American Kidney Fund YouTube Playlist on ...

Kidney Health for All

Kidney Health for All Kidney Health for All | AKF An example of comprehensive clinical trial ...

American Kidney Fund Clinical Trials Overview and Toolkit

American Kidney Fund Clinical Trials Overview and Toolkit American Kidney Fund Clinical Trials ...

Patient Listening Sessions

Patient Listening Sessions Patient Listening Sessions | FDA These sessions are a resource for the ...

Bridge: Patient to Investigator Training

Bridge: Patient to Investigator Training Bridge: Patient to Investigator Training | COPD Foundation ...

Mapping the Patient Journey

Mapping the Patient Journey Mapping the Patient Journey | DTRA DTRA: Downloadable journey maps, ...

CISCRP’s FAQ Section

CISCRP’s FAQ Section CISCRP’s FAQ Section | CISCRP Website for PAGs to access frequently ...

RareLaunch – Research Ready

RareLaunch – Research Ready RareLaunch – Research Ready | NORD Course for PAGs to ...

Breaking Barriers to Clinical Trials

Breaking the Barriers to Clinical Trials Breaking the Barriers to Clinical Trials | TigerLilly PDF ...

Understanding Clinical Trials

Understanding Clinical Trials Understanding Clinical Trials | TigerLilly PDF of a comprehensive ...

Phases of Clinical Trials

Phases of Clinical Trials Phases of Clinical Trials | CSL A one page sheet tailored for patients, ...

The 5 Steps in Drug Development

The 5 Steps in Drug Development The 5 Steps in Drug Development | NORD NORD: PDF handout from the ...

Getting Ready for Research as a Rare Disease Patient Advocate

Getting Ready for Research as a Rare Disease Patient Advocate Getting Ready for Research as a Rare ...

Sanofi launches R&D Consortium of industry and patient advocacy groups to accelerate medicines development

First-of-its-kind consortium brings together advocacy and industry organizations to address ...
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