CTTI and FDA Public Workshop on Enhancing the Incorporation of Patient Perspectives in Clinical Trials CTTI and FDA Public Workshop on Enhancing the Incorporation of Patient Perspectives in Clinical Trials | FDA An overview of a March 2019 CTTI and FDA Public Workshop on Enhancing the Incorporation of Patient Perspectives Read more…
Public Workshop on Enhancing the Incorporation of Patient Perspectives in Clinical Trials Public Workshop on Enhancing the Incorporation of Patient Perspectives in Clinical Trials | CTTI and FDA Workshop on ideas for best practices and key considerations for enhancing the incorporation of patient perspectives on clinical trial access, design, conduct, Read more…
RareLaunch – Research Ready RareLaunch – Research Ready | NORD Course for PAGs to prepare for participation in research, especially in rare diseases: understand the basics of natural history studies, learn about the Institutional Review Board (IRB) Process, collaborate with researchers and industry, and leverage social media to recruit participants. Read more…
Getting Ready for Research as a Rare Disease Patient Advocate Getting Ready for Research as a Rare Disease Patient Advocate | NCAT NCATS: Powerpoint presentation from the NORD RareLaunch Research Ready Workshop that introduces Rare Disease Patient Advocates to resources for involvement in research. View & Download Here