Family Caregiver Roles in Medical Product Development Family Caregiver Roles in Medical Product Development | NAC This document describes the role of caregivers in medical product development. View Here
Caregiver Recommendations for Enhancing Clinical Trial Participation Diversity Caregiver Recommendations for Enhancing Clinical Trial Participation Diversity | NAC Recommendations from caregivers to enhance clinical research participation View Here
Clinical Trials Essentials: What You Need to Know to be a Part of the Latest Research Clinical Trials Essentials: What You Need to Know to be a Part of the Latest Research | NBDF This resource aims to provide patients with information and guidance regarding clinical trials and their participation. Read more…
Return of Individual Research Results Return of Individual Research Results | MRCT Center of Brigham and Women’s Hospital and Harvard Guidance covering practical considerations for returning Individual Research Results (IRR): who should return it, when should it be returned, and and how can/should participants choose to receive it. Also downloadable Read more…
Clinical Research Glossary Clinical Research Glossary | MRCT Center of Brigham and Women’s Hospital and Harvard This plain language resource, designed in collaboration with patients and patient advocates, is visually engaging with plain language content, definitions, images and other helpful information for clinical research professionals to use in creating research Read more…
Clinical Trials: Myths and Facts Clinical Trials: Myths and Facts | AKF A report for patients to share myths and facts about clinical trials helping to build understanding of key aspects and concerns of clinical trials. Download Here
University of Maryland Patients Program University of Maryland Patients Program | UMD | Example The PATIENTS Professors Academy offers a complimentary 5-week program conducted entirely online, featuring interactive elements facilitated by our patient advisors and subject matter experts. View Here
Multi-Regional Clinical Trials (MRCT) Website Multi-Regional Clinical Trials Website | MRCT “Information on the MRCT (Multi-Regional Clinical Trials) Center at Brigham and Women’s Hospital with four primary areas of focus that address pressing issues in multi-regional clinical trials.MRCT: About Us“”Our Focus Areas” by MRCT (https://mrctcenter.org/about/focus-areas/) is licensed under CC BY-NC-SA Read more…
About Page | Clinical Trials for All About Page | Clinical Trials for All A website dedicated to educating patients and caregivers about the benefits and opportunities of clinical research, including a resource library from a wide variety of national health organizations, health science companies, patient advocates, past clinical trial Read more…
Creating a Best Practice Template for Participant Communication Plans in Global Health Clinical Studies Creating a Best Practice Template for Participant Communication Plans in Global Health Clinical Studies | Trials ” A proposed template for universally applicable best practices in communication for clinical trial findings in low and middle-income countries. Read more…
Talking to Your Patient About a Clinical Trial Talking to Your Patient About a Clinical Trial | NIH Guidance for physicians on effectively communicating clinical trial consent to patients. Dr. Eric Kodish’s NCI-funded research introduced a sequential approach, with steps covering disease understanding, standard treatments, and clinical trial options, all Read more…
CISCRP’s Journey to Better Health Mobile Exhibit Journey to Better Health Mobile Exhibit | CISCRP CISCRP: Journey to Better Health is a model Video by CISCRP about how a mobile unit is used to provide CT education and awareness. View Here
CISCRP’s AWARE for All Program AWARE for All Program | CISCRP CISCRP: Aware for All, developed by CISCRP, stands as an exemplary educational initiative that collaborates with various organizations to disseminate comprehensible clinical research knowledge to the masses. Through this program, individuals can benefit from complimentary health screenings, interactive booths, Read more…
Allergy and Asthma Network Trusted Messenger Community Program Allergy and Asthma Network Trusted Messenger Community Program | AAN The AAN has developed a Trusted Messenger Community Program with Sanofi that provides free online health screening, offers a six week respitory health program, and provides access to free resources. View Here
Tigerlilly Angels Program Tigerlilly Angels Program | Tigerlilly The Tigerlilly Angel Advocacy Program is model for comprehensive training in community advocacy. The Angel Advocacy Program trains women of color between the ages of 21 and 50, who have been impacted by breast cancer to become more knowledgeable about the disease Read more…
CIOMS Working Group XI – Patient Involvement CIOMS Working Group XI – Patient Involvement | CIOMS Published in 2022, this report underscores the essential role of patient involvement throughout the entire lifecycle of medicine, from early development to regulatory processes and ongoing healthcare usage. It offers a comprehensive overview of Read more…
Clinical Trials Transformation Initiative Clinical Trials Transformation Initiative | CTTI Information on CTTI (Clinical Trials Transformation Initiative). View Here
A Secondary Qualitative Analysis of Stakeholder Views About Participant Recruitment, Retention and Adherence in Decentralised Clinical Trials (DCTs) A Secondary Qualitative Analysis of Stakeholder Views About Participant Recruitment, Retention and Adherence in Decentralised Clinical Trials (DCTs) | Article “An overview of recruitment, retention, and adherence in DCTs.Coyle J, Rogers A, Read more…
CISCRP Perceptions and Insights Study 2021 CISCRP Perceptions and Insights Study 2021 | CISCRP A summary of the results of the latest global survey of general public and patient perceptions about clinical research, including comparisons between 2019-2021. The findings can help inform the development of targeted outreach and educational strategies. Read more…
American Kidney Fund YouTube playlist on Clinical Trials American Kidney Fund YouTube Playlist on Clinical Trials | AKF A variety of informational videos are available to educate patients about clinical trials. These videos cover crucial topics such as the significance of diversity, participation, and debunking common myths and facts associated Read more…