MJFF Retention Toolkit MJFF Retention Toolkit | MJFF Templates for retaining patients throughout the duration of a clinical trial. Resources: Guide to the Retention Toolkit Retention Plan Template IV. Facilitate Study Participation Study Reminders & Information Participant Intro Letter Template Calendar of Activities Template Calendar of Activities Sample Appointment Card Read more…
Research Study Thank You Caregiver Sample Research Study Thank You Caregiver Sample | Sample Shared by PALADIN Member Sample thank you to a caregiver of a person who has participated in a study. View & Download Here
Use of an Online Portal to Facilitate Clinical Trial Recruitment: A Preliminary Analysis of Fox Trial Finder Use of an Online Portal to Facilitate Clinical Trial Recruitment: A Preliminary Analysis of Fox Trial Finder | Journal of Parkinson’s Disease “An example of ways that potential actions patient advocacy groups can Read more…
Research Study Visit Scheduler Sample Research Study Visit Scheduler Sample | Sample Example of a research study visit scheduler to help participants. View & Download Here
Research Study Participation Thank You Card to Adolescent Sample Research Study Participation Thank You Card to Adolescent Sample | Sample Shared by PALADIN Member Example of a thank you card to send to a person who has participated in a study. View & Download Here
Research Study Visit Guide Sample Research Study Visit Guide Sample | Sample Shared by PALADIN Member Sample of a research study visit guide to assist sponsors. View & Download Here
Research Study Brochure Sample Research Study Brochure Sample | Sample Shared by PALADIN Member Example of a research study brochure that sponsors and patient advocacy groups can use for their own efforts. View & Download Here
ACP: Your Partner for Patient-Centered MS Research Understanding Clinical Trials | TigerLilly ACP: Your Partner for Patient-Centered MS Research | ACP Example from Accelerated Cure Project of ways sponsors can work with a patient advocacy organization is a sample that other patient advocacy groups can use to help identify and Read more…
Clinical Trials: Myths and Facts Clinical Trials: Myths and Facts | AKF A report for patients to share myths and facts about clinical trials helping to build understanding of key aspects and concerns of clinical trials. Download Here
Multi-Regional Clinical Trials (MRCT) Website Multi-Regional Clinical Trials Website | MRCT “Information on the MRCT (Multi-Regional Clinical Trials) Center at Brigham and Women’s Hospital with four primary areas of focus that address pressing issues in multi-regional clinical trials.MRCT: About Us“”Our Focus Areas” by MRCT (https://mrctcenter.org/about/focus-areas/) is licensed under CC BY-NC-SA Read more…
About Page | Clinical Trials for All About Page | Clinical Trials for All A website dedicated to educating patients and caregivers about the benefits and opportunities of clinical research, including a resource library from a wide variety of national health organizations, health science companies, patient advocates, past clinical trial Read more…
Talking to Your Patient About a Clinical Trial Talking to Your Patient About a Clinical Trial | NIH Guidance for physicians on effectively communicating clinical trial consent to patients. Dr. Eric Kodish’s NCI-funded research introduced a sequential approach, with steps covering disease understanding, standard treatments, and clinical trial options, all Read more…
CISCRP’s Journey to Better Health Mobile Exhibit Journey to Better Health Mobile Exhibit | CISCRP CISCRP: Journey to Better Health is a model Video by CISCRP about how a mobile unit is used to provide CT education and awareness. View Here
CISCRP’s AWARE for All Program AWARE for All Program | CISCRP CISCRP: Aware for All, developed by CISCRP, stands as an exemplary educational initiative that collaborates with various organizations to disseminate comprehensible clinical research knowledge to the masses. Through this program, individuals can benefit from complimentary health screenings, interactive booths, Read more…
Patient Focused Medicines Development (PFMD) Patient Focused Medicines Development (PFMD) “Information on PFMD, A global collaborative and non-competitive coalition to Improve global health byco-designing the future of healthcare for patients with patients.The PFMD network is making sure to aggregate existing knowledge and tools, identifying good practices and coherently combining them Read more…
Clinical Trials Transformation Initiative Clinical Trials Transformation Initiative | CTTI Information on CTTI (Clinical Trials Transformation Initiative). View Here
CTTI and FDA Public Workshop on Enhancing the Incorporation of Patient Perspectives in Clinical Trials CTTI and FDA Public Workshop on Enhancing the Incorporation of Patient Perspectives in Clinical Trials | FDA An overview of a March 2019 CTTI and FDA Public Workshop on Enhancing the Incorporation of Patient Perspectives Read more…
Global Investigative Site Personnel Diversity and Its Relationship with Study Participant Diversity Global Investigative Site Personnel Diversity and Its Relationship with Study Participant Diversity | Therapeutic Innovation & Regulatory Science Scant empirical data exists regarding the racial and ethnic demographics of professionals overseeing pharmaceutical and biotech-funded clinical trials and their Read more…
Clinical Trials Recruitment Planning: A Proposed Framework from CTTI Clinical Trials Recruitment Planning: A Proposed Framework from CTTI | Contemporary Clinical Trials Journal “Article that examines the challenges and issues actionable, evidence-based recommendations for improving recruitment planning that extend beyond common study-specific strategies. Articledescribes a framework that delineates three areas Read more…
A Secondary Qualitative Analysis of Stakeholder Views About Participant Recruitment, Retention and Adherence in Decentralised Clinical Trials (DCTs) A Secondary Qualitative Analysis of Stakeholder Views About Participant Recruitment, Retention and Adherence in Decentralised Clinical Trials (DCTs) | Article “An overview of recruitment, retention, and adherence in DCTs.Coyle J, Rogers A, Read more…