Accelerating Clinical Trials: Best Practice for Recruitment and Retention Accelerating Clinical Trials: Best Practice for Recruitment and Retention | MJFF “This guide adopts the participant journey as a framework to enhance the design of clinical trials. Beginning with recruitment and extending through post-trial follow-up, participants willingly embark on a pathway Read more…
MRCT Resources MRCT Resources| MRCT Center of Brigham and Women’s Hospital and Harvard “MRCT Center resources include case studies, framework and guidance documents, meeting summaries and webinar recordings, presentations, publications, and more.Information on the MRCT (Multi-Regional Clinical Trials) Center at Brigham and Women’s Hospital with four primary areas of focus Read more…
Benchmarking Patient Recruitment and Retention Practices Benchmarking Patient Recruitment and Retention Practices | Article “Results from the 2020 study that benchmarks patient recruitment and retention practices across global clinical trials.Lamberti, M. J., Smith, Z., Henry, R., Howe, D., Goodwin, M., Williams, A., & Getz, K. (2021). Benchmarking Patient Recruitment and Read more…
American Kidney Fund YouTube playlist on Clinical Trials American Kidney Fund YouTube Playlist on Clinical Trials | AKF A variety of informational videos are available to educate patients about clinical trials. These videos cover crucial topics such as the significance of diversity, participation, and debunking common myths and facts associated Read more…
Kidney Health for All Kidney Health for All | AKF An example of comprehensive clinical trial information that encompasses the importance of representing all individuals and highlights the advantages of participating in clinical trials. Learn More Here
American Kidney Fund Clinical Trials Overview and Toolkit American Kidney Fund Clinical Trials Overview and Toolkit | AKF Clinical trials play a pivotal role in advancing the treatment of chronic kidney disease and other kidney ailments. Discover the inner workings of clinical trials and determine if you meet the criteria Read more…
ICH Reflection Paper: Proposed ICH Guideline Work to Advance Patient Focused Drug Development ICH Reflection Paper: Proposed ICH Guideline Work to Advance Patient Focused Drug Development | ICH Importance of bringing patient perspective in clinical research a series of drug development and regulatory decision-relevant questions that arise during the drug Read more…
MT Pharmacy Video MT Pharmacy | CISCRP and Sanofi Video PSA from CISCRP and Sanofi that emphasizes the value of participation in clinical research, contributed by Sanofi. Watch Video
CISCRP’s FAQ Section CISCRP’s FAQ Section | CISCRP Website for PAGs to access frequently asked questions about clinical trials and glossary of terms. Learn More Here
European Patients’ Academy on Therapeutic Innovation (EUPATI) Toolbox European Patients’ Academy on Therapeutic Innovation (EUPATI) Toolbox | EUPATI “EUPATI: Toolbox for PAG leadership that provides guidance on R&D topics. “”EUPATI Toolbox” by EUPATI (https://eupati.eu/) is licensed under CC BY-NC-SA 4.0. (https://creativecommons.org/licenses/by-nc-sa/4.0/)” Learn More Here
Breaking the Barriers to Clinical Trials Breaking the Barriers to Clinical Trials | TigerLilly PDF toolkit addressing barriers to clinical Trials for PAGs use with cancer patients and others. Includes tips for effectively working with your healthcare team. View & Download Here
Understanding Clinical Trials Understanding Clinical Trials | TigerLilly PDF of a comprehensive brochure on understanding clinical trials for breast cancer patients. View & Download Here
Using Registry Data to Empower Your Organization and Engage with Researchers Using Registry Data to Empower Your Organization and Engage with Researchers | NORD NORD: Enroll in the free course to access a Power Point Presentation that outlines a case study on how a Patient Advocacy Group can launch a Read more…