MJFF Retention Toolkit MJFF Retention Toolkit | MJFF Templates for retaining patients throughout the duration of a clinical trial. Resources: Guide to the Retention Toolkit Retention Plan Template IV. Facilitate Study Participation Study Reminders & Information Participant Intro Letter Template Calendar of Activities Template Calendar of Activities Sample Appointment Card Read more…
Family Caregiver Roles in Medical Product Development Family Caregiver Roles in Medical Product Development | NAC This document describes the role of caregivers in medical product development. View Here
Caregiver Recommendations for Enhancing Clinical Trial Participation Diversity Caregiver Recommendations for Enhancing Clinical Trial Participation Diversity | NAC Recommendations from caregivers to enhance clinical research participation View Here
Clinical Trials Essentials: What You Need to Know to be a Part of the Latest Research Clinical Trials Essentials: What You Need to Know to be a Part of the Latest Research | NBDF This resource aims to provide patients with information and guidance regarding clinical trials and their participation. Read more…
Use of an Online Portal to Facilitate Clinical Trial Recruitment: A Preliminary Analysis of Fox Trial Finder Use of an Online Portal to Facilitate Clinical Trial Recruitment: A Preliminary Analysis of Fox Trial Finder | Journal of Parkinson’s Disease “An example of ways that potential actions patient advocacy groups can Read more…
HealthMatch Report: Quantifying Diversity, Equity and Inclusion in Clinical Trials HealthMatch Report: Quantifying Diversity, Equity and Inclusion in Clinical Trials A report with findings from a large clinical trial patient engagement survey. Users on the HealthMatch platform and received 7,903 responses among patients. Questions explored interactions with the health system, Read more…
Clinical Trials: Myths and Facts Clinical Trials: Myths and Facts | AKF A report for patients to share myths and facts about clinical trials helping to build understanding of key aspects and concerns of clinical trials. Download Here
University of Maryland Patients Program University of Maryland Patients Program | UMD | Example The PATIENTS Professors Academy offers a complimentary 5-week program conducted entirely online, featuring interactive elements facilitated by our patient advisors and subject matter experts. View Here
MS Minority Research Engagement Toolkit MS Minority Research Engagement Toolkit – Researchers | MS Minority Research Engagement Partnership Network (MS MREPN) Tools and discussion guides, evidence-based research on patient perceptions, resources for identifying community leaders and reaching out to different groups, and educational materials. These tools are intended to help Read more…
About Page | Clinical Trials for All About Page | Clinical Trials for All A website dedicated to educating patients and caregivers about the benefits and opportunities of clinical research, including a resource library from a wide variety of national health organizations, health science companies, patient advocates, past clinical trial Read more…
NIH All of Us Research Program All of Us Research Program | NIH The NIH All of Us Research Program provides an opportunity for everyone who wants to participate to provide health data to help build one of the most diverse health databases in history to help researchers learn how Read more…
Allergy and Asthma Network Trusted Messenger Community Program Allergy and Asthma Network Trusted Messenger Community Program | AAN The AAN has developed a Trusted Messenger Community Program with Sanofi that provides free online health screening, offers a six week respitory health program, and provides access to free resources. View Here
Condition-Specific Meeting Reports and Other Information Related to Patients’ Experience Condition-Specific Meeting Reports and Other Information Related to Patients’ Experience | FDA A collection of condition-specific meeting reports from FDA Patient Listening Sessions. View Here
MS Minority Research Engagement Toolkit – Clinicians MS Minority Research Engagement Toolkit – Clinicians | PCORI Tools and discussion guides, evidence-based research on patient perceptions, resources for identifying current opportunities, and educational materials to download for your patients. View & Download Here
American Kidney Fund YouTube playlist on Clinical Trials American Kidney Fund YouTube Playlist on Clinical Trials | AKF A variety of informational videos are available to educate patients about clinical trials. These videos cover crucial topics such as the significance of diversity, participation, and debunking common myths and facts associated Read more…
Kidney Health for All Kidney Health for All | AKF An example of comprehensive clinical trial information that encompasses the importance of representing all individuals and highlights the advantages of participating in clinical trials. Learn More Here
American Kidney Fund Clinical Trials Overview and Toolkit American Kidney Fund Clinical Trials Overview and Toolkit | AKF Clinical trials play a pivotal role in advancing the treatment of chronic kidney disease and other kidney ailments. Discover the inner workings of clinical trials and determine if you meet the criteria Read more…
Patient Engagement Patient Engagement | National Health Council Guidance for PAGs on fairly and adequately capturing patient voice in clinical research. Learn More Here
Bridge: Patient to Investigator Training Bridge: Patient to Investigator Training | COPD Foundation Training module preparing COPD patients and caregivers to work with researchers and become a part of study teams. Learn More Here
MT Pharmacy Video MT Pharmacy | CISCRP and Sanofi Video PSA from CISCRP and Sanofi that emphasizes the value of participation in clinical research, contributed by Sanofi. Watch Video