Services Agreement Template Between Company and Patient Services Agreement Template Between Company and Patient | Template Shared by PALADIN Member A template for an agreement between patients and an organization. Download Here
Unilateral Confidentiality Agreement Template Unilateral Confidentiality Agreement Template | Template Shared by PALADIN Member Sample template for a unilateral confidentiality agreement between a patient advocacy group and industry partner. Download Here
Working with Community Advisory Boards: Guidance and Tools for Patient Communities and Pharmaceutical Companies Working with Community Advisory Boards: Guidance and Tools for Patient Communities and Pharmaceutical Companies | IHI (formerly IMI) PARADIGM A toolkit encompassing guidance and resources related to community and patient advocacy in the healthcare industry. View Read more…
National Hemophilia Foundation History Presentation NHF History Presentation | NBDF (formerly NHF) NBDF: A video that introduces the NBDF mission to an Industry partner, serving as an example of how a patient advocacy group may onboard an Industry partner. Watch Video
RareLaunch – Research Ready RareLaunch – Research Ready | NORD Course for PAGs to prepare for participation in research, especially in rare diseases: understand the basics of natural history studies, learn about the Institutional Review Board (IRB) Process, collaborate with researchers and industry, and leverage social media to recruit participants. Read more…
Impact of Research When Your Organization Drives It Impact of Research When Your Organization Drives It | NORD NORD: Powerpoint presentation on the value of PAG involvement in research. View & Download Here
How to Connect with Scientists and Industry Stakeholders How to Connect with Scientists and Industry Stakeholders | NORD NORD: Enroll in the course to access a Power point presentation to help PAGs to inform how to engage with medical and scientific community on how to form a Medical/scientific advisory board Read more…
Using Registry Data to Empower Your Organization and Engage with Researchers Using Registry Data to Empower Your Organization and Engage with Researchers | NORD NORD: Enroll in the free course to access a Power Point Presentation that outlines a case study on how a Patient Advocacy Group can launch a Read more…
Getting Ready for Research as a Rare Disease Patient Advocate Getting Ready for Research as a Rare Disease Patient Advocate | NCAT NCATS: Powerpoint presentation from the NORD RareLaunch Research Ready Workshop that introduces Rare Disease Patient Advocates to resources for involvement in research. View & Download Here