Use of an Online Portal to Facilitate Clinical Trial Recruitment: A Preliminary Analysis of Fox Trial Finder Use of an Online Portal to Facilitate Clinical Trial Recruitment: A Preliminary Analysis of Fox Trial Finder | Journal of Parkinson’s Disease “An example of ways that potential actions patient advocacy groups can Read more…
Assessment of the Use of Patient Experience Data in Regulatory Decision-Making Assessment of the Use of Patient Experience Data in Regulatory Decision-Making | FDA Report on how to better communicate and expand the use of patient experience data in regulatory decision-making to the FDA. View Here
Developing and Submitting Proposed Draft Guidance Relating to Patient Experience Data Developing and Submitting Proposed Draft Guidance Relating to Patient Experience Data | FDA An overview of patient experience data draft guidance. View Here
Using Registry Data to Empower Your Organization and Engage with Researchers Using Registry Data to Empower Your Organization and Engage with Researchers | NORD NORD: Enroll in the free course to access a Power Point Presentation that outlines a case study on how a Patient Advocacy Group can launch a Read more…