Assessing the Financial Value of Patient Engagement: A Quantitative Approach from CTTI’s Patient Groups and Clinical Trials Project Assessing the Financial Value of Patient Engagement: A Quantitative Approach from CTTI’s Patient Groups and Clinical Trials Project | Article “In a 2017 article, a novel approach was introduced for assessing the Read more…
Discover the Tools to Support Fair Remuneration of the Patient Community for Interactions With the Pharmaceutical Industry Discover the Tools to Support Fair Remuneration of the Patient Community for Interactions With the Pharmaceutical Industry | PFMD Shares principles, frameworks, and planners for remunerating the patient community for interactions with the Read more…
CIOMS Working Group XI – Patient Involvement CIOMS Working Group XI – Patient Involvement | CIOMS Published in 2022, this report underscores the essential role of patient involvement throughout the entire lifecycle of medicine, from early development to regulatory processes and ongoing healthcare usage. It offers a comprehensive overview of Read more…
Patient Focused Medicines Development (PFMD) Patient Focused Medicines Development (PFMD) “Information on PFMD, A global collaborative and non-competitive coalition to Improve global health byco-designing the future of healthcare for patients with patients.The PFMD network is making sure to aggregate existing knowledge and tools, identifying good practices and coherently combining them Read more…
Innovative Health Initiative Innovative Health Initiative | IHI Information on IHI, an EU public-private partnership funding health research and innovation. View Here
Patient Centered Outcomes Research Institute Patient Centered Outcomes Research Institute | PCORI Information on Patient Centered Outcomes Research Institute (PCORI). View Here
Clinical Trials Transformation Initiative Clinical Trials Transformation Initiative | CTTI Information on CTTI (Clinical Trials Transformation Initiative). View Here
CDER Patient-Focused Drug Development CDER Patient-Focused Drug Development Overview of PFDD (Patient-Focused Drug Development). View Here
MRCT Resources MRCT Resources| MRCT Center of Brigham and Women’s Hospital and Harvard “MRCT Center resources include case studies, framework and guidance documents, meeting summaries and webinar recordings, presentations, publications, and more.Information on the MRCT (Multi-Regional Clinical Trials) Center at Brigham and Women’s Hospital with four primary areas of focus Read more…
Touch, the Black Breast Cancer Alliance Touch, the Black Breast Cancer Alliance Touch, The Black Breast Cancer Alliance drives the collaborative efforts of patients, survivors, advocates, advocacy organizations, health care professionals, researchers, and pharmaceutical companies to work collectively, with accountability, towards the common goal of eradicating Black Breast Cancer. Learn Read more…
Mapping the Patient Journey Mapping the Patient Journey | DTRA DTRA: Downloadable journey maps, including Oncology Journey Map, the Rare Disease Journey Map, and the RSV Vaccine Journey Map, that PAGs can use to show patients visual path for clinical trial participation. Learn More Here
CISCRP’s FAQ Section CISCRP’s FAQ Section | CISCRP Website for PAGs to access frequently asked questions about clinical trials and glossary of terms. Learn More Here