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MJFF Retention Toolkit

Audience: PAG,Clinical Trials & Recruitment,Question: Where can I find a guidance on clinical trial recruitment or retention (e.g. recruitment plan)?,Reaching your patient recruitment goals,Toolkit

MJFF Retention Toolkit MJFF Retention Toolkit | MJFF Templates for retaining patients throughout the ...

Family Caregiver Roles in Medical Product Development

Audience: PAG,Building patient awareness of clinical trials,Website

Family Caregiver Roles in Medical Product Development Family Caregiver Roles in Medical Product ...

Caregiver Recommendations for Enhancing Clinical Trial Participation Diversity

Audience: PAG,Building patient awareness of clinical trials,Increasing diversity and inclusion in recruitment,Website

Caregiver Recommendations for Enhancing Clinical Trial Participation Diversity Caregiver ...

Clinical Trials Essentials: What You Need to Know to be a Part of the Latest Research

Audience: PAG,Building patient awareness of clinical trials,Guidance

Clinical Trials Essentials: What You Need to Know to be a Part of the Latest Research Clinical ...

Use of an Online Portal to Facilitate Clinical Trial Recruitment: A Preliminary Analysis of Fox Trial Finder

Audience: PAG,Clinical Trials & Recruitment,Reaching your patient recruitment goals,Utilizing Patient Experience and Registry Data,Website

Use of an Online Portal to Facilitate Clinical Trial Recruitment: A Preliminary Analysis of Fox ...

HealthMatch Report- Quantifying Diversity, Equity and Inclusion in Clinical Trials

Audience: PAG,Diversity & Engagement Modules,Increasing diversity and inclusion in recruitment,Informational Document

HealthMatch Report: Quantifying Diversity, Equity and Inclusion in Clinical Trials HealthMatch ...

Clinical Trials: Myths and Facts

Audience: PAG,Building patient awareness of clinical trials,Clinical Trials & Recruitment,

Clinical Trials: Myths and Facts Clinical Trials: Myths and Facts | AKF A report for patients to ...

University of Maryland Patients Program

Audience: PAG,Building patient awareness of clinical trials,Course,Diversity & Engagement Modules

University of Maryland Patients Program University of Maryland Patients Program | UMD | Example The ...

MS Minority Research Engagement Toolkit

Audience: PAG,Diversity & Engagement Modules,Increasing diversity and inclusion in recruitment,Toolkit

MS Minority Research Engagement Toolkit MS Minority Research Engagement Toolkit – Researchers ...

About Page | Clinical Trials for All

Audience: PAG,Building patient awareness of clinical trials,Clinical Trials & Recruitment,Website

About Page | Clinical Trials for All About Page | Clinical Trials for All A website dedicated to ...

NIH All of Us Research Program

Audience: PAG,Diversity & Engagement Modules,Increasing diversity and inclusion in recruitment,Website

NIH All of Us Research Program All of Us Research Program | NIH The NIH All of Us Research Program ...

Allergy and Asthma Network Trusted Messenger Community Program

Audience: PAG,Building patient awareness of clinical trials,Course,Diversity & Engagement Modules

Allergy and Asthma Network Trusted Messenger Community Program Allergy and Asthma Network Trusted ...

Condition-Specific Meeting Reports and Other Information Related to Patients’ Experience

Audience: PAG,Designing a patient-centric protocol,Informational Document,Training Modules

Condition-Specific Meeting Reports and Other Information Related to Patients’ Experience ...

MS Minority Research Engagement Toolkit – Clinicians

Audience: PAG,Diversity & Engagement Modules,Increasing diversity and inclusion in recruitment,Toolkit

MS Minority Research Engagement Toolkit – Clinicians MS Minority Research Engagement Toolkit ...

American Kidney Fund YouTube playlist on Clinical Trials

Audience: PAG,Building patient awareness of clinical trials,Clinical Trials & Recruitment,Video

American Kidney Fund YouTube playlist on Clinical Trials American Kidney Fund YouTube Playlist on ...

Kidney Health for All

Audience: PAG,Brochure,Building patient awareness of clinical trials,Clinical Trials & Recruitment

Kidney Health for All Kidney Health for All | AKF An example of comprehensive clinical trial ...

American Kidney Fund Clinical Trials Overview and Toolkit

Audience: PAG,Building patient awareness of clinical trials,Clinical Trials & Recruitment,Toolkit

American Kidney Fund Clinical Trials Overview and Toolkit American Kidney Fund Clinical Trials ...

Patient Engagement

Audience: PAG,Best Practices from Patient Engagement Organization,Designing a patient-centric protocol,Diversity & Engagement Modules,Regulatory Resource,Template

Patient Engagement Patient Engagement | National Health Council Guidance for PAGs on fairly and ...

Bridge: Patient to Investigator Training

Audience: PAG,Best Practices from PAG,Building patient awareness of clinical trials,Course,Training Modules

Bridge: Patient to Investigator Training Bridge: Patient to Investigator Training | COPD Foundation ...

MT Pharmacy

Audience: PAG,Best Practices from Patient Engagement Organization,Building patient awareness of clinical trials,Clinical Trials & Recruitment,Demonstrating Value to Stakeholders,Video

MT Pharmacy Video MT Pharmacy | CISCRP and Sanofi Video PSA from CISCRP and Sanofi that emphasizes ...

Why Diversity Matters in Clinical Trials

Audience: PAG,Best Practices from Industry,Diversity & Engagement Modules,Increasing diversity and inclusion in recruitment,Video

Why Diversity Matters in Clinical Trials Video Why Diversity Matters in Clinical Trials | CSL Video ...

Mapping the Patient Journey

Audience: PAG,Building patient awareness of clinical trials,Training Modules,Website

Mapping the Patient Journey Mapping the Patient Journey | DTRA DTRA: Downloadable journey maps, ...

CISCRP’s FAQ Section

Audience: PAG,Building patient awareness of clinical trials,Clinical Trials & Recruitment,Website

CISCRP’s FAQ Section CISCRP’s FAQ Section | CISCRP Website for PAGs to access frequently ...

European Patients’ Academy on Therapeutic Innovation (EUPATI) Open Classroom

Audience: PAG,Best Practices from Patient Engagement Organization,Building patient awareness of clinical trials,Course,Training Modules

European Patients’ Academy on Therapeutic Innovation (EUPATI) Open Classroom European ...

European Patients’ Academy on Therapeutic Innovation (EUPATI) Toolbox

Audience: PAG,Best Practices from Patient Engagement Organization,Building patient awareness of clinical trials,Clinical Trials & Recruitment,Toolkit

European Patients’ Academy on Therapeutic Innovation (EUPATI) Toolbox European Patients’ ...

RareLaunch – Research Ready

Audience: PAG,Successful collaboration between PAGs & Industry,Training Modules,Workshop

RareLaunch – Research Ready RareLaunch – Research Ready | NORD Course for PAGs to ...

Breaking Barriers to Clinical Trials

Audience: PAG,Best Practices from PAG,Clinical Trials & Recruitment,Increasing diversity and inclusion in recruitment,Toolkit

Breaking the Barriers to Clinical Trials Breaking the Barriers to Clinical Trials | TigerLilly PDF ...

Understanding Clinical Trials

Audience: PAG,Best Practices from PAG,Brochure,Building patient awareness of clinical trials,Clinical Trials & Recruitment

Understanding Clinical Trials Understanding Clinical Trials | TigerLilly PDF of a comprehensive ...

Phases of Clinical Trials

Audience: PAG,Building patient awareness of clinical trials,,Training Modules

Phases of Clinical Trials Phases of Clinical Trials | CSL A one page sheet tailored for patients, ...

The 5 Steps in Drug Development

Audience: PAG,Building patient awareness of clinical trials,Course,Training Modules

The 5 Steps in Drug Development The 5 Steps in Drug Development | NORD NORD: PDF handout from the ...

Impact of Research When Your Organization Drives It

Audience: PAG,Best Practices from PAG,Demonstrating Value to Stakeholders,,Successful collaboration between PAGs & Industry,Training Modules

Impact of Research When Your Organization Drives It Impact of Research When Your Organization Drives ...

How to Connect with Scientists and Industry Stakeholders

Audience: PAG,Best Practices from PAG,Informational Document,Successful collaboration between PAGs & Industry,Training Modules

How to Connect with Scientists and Industry Stakeholders How to Connect with Scientists and Industry ...

Using Registry Data to Empower Your Organization and Engage with Researchers

Audience: PAG,Best Practices from PAG,Case Study,Clinical Trials & Recruitment,Successful collaboration between PAGs & Industry,Utilizing Patient Experience and Registry Data

Using Registry Data to Empower Your Organization and Engage with Researchers Using Registry Data to ...

Getting Ready for Research as a Rare Disease Patient Advocate

Audience: PAG,Successful collaboration between PAGs & Industry,Training Modules,Workshop

Getting Ready for Research as a Rare Disease Patient Advocate Getting Ready for Research as a Rare ...

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